{"id":45404,"date":"2014-07-22T10:34:55","date_gmt":"2014-07-22T10:34:55","guid":{"rendered":"http:\/\/mostafa.openonline.co.uk\/?guid=5ca9c75853b895c71cbf420f640e2488"},"modified":"2014-07-22T10:34:55","modified_gmt":"2014-07-22T10:34:55","slug":"news-story-mitochondrial-donation-plans-progress-following-consultation","status":"publish","type":"post","link":"https:\/\/mostafa.openonline.co.uk\/?p=45404","title":{"rendered":"News story: Mitochondrial donation plans progress following consultation"},"content":{"rendered":"<div class=\"govspeak\">\n<p>Mitochondrial disease is passed from mother to child through faults in the mitochondrial DNA. It is estimated that 1 in 6,500 children are born every year in the UK with a serious mitochondrial DNA disorder. <\/p>\n<p>A consultation on proposed new regulations resulted in more than 1,850 responses. Following consideration of these the department has agreed to: <\/p>\n<ul>\n<li>keep the definition of the mitochondrial donation techniques as they are set out in the draft proposals<\/li>\n<li>continue with plans that the Human Fertilisation and Embryology Authority (<abbr title=\"Human Fertilisation and Embryology Authority\">HFEA<\/abbr>) would have to be satisfied that there is both a particular risk of mitochondrial abnormality and a significant risk the person will develop a serious illness or condition<\/li>\n<li>the <abbr title=\"Human Fertilisation and Embryology Authority\">HFEA<\/abbr> will consider each application on a case-by-case basis<\/li>\n<li>only non-identifying information about the mitochondrial donor will be released to people born following mitochondrial donation when they reach age 16 <\/li>\n<li>clarification will be given to the consent requirements around the use and storage of eggs and embryos used in the mitochondrial donation techniques<\/li>\n<li>further consider the recommendations of the Expert Panel, refine the draft regulations to take account of changes identified during the consultation, and discuss with the <abbr title=\"Human Fertilisation and Embryology Authority\">HFEA<\/abbr> an appropriate approval process<\/li>\n<\/ul>\n<p>The department will consider the timing of the regulations in the light of these actions and aim to provide an update by early autumn.<\/p>\n<p>See full consultation response.<\/p>\n<p>Serious mitochondrial disease can have a devastating effect on families, including the premature death of children, painful, debilitating and disabling suffering, long-term ill-health and low quality of life.<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Plans to legalise use of new techniques to prevent mothers passing on serious mitochondrial diseases to their children are to progress.<\/p>\n","protected":false},"author":8,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[13],"tags":[],"_links":{"self":[{"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=\/wp\/v2\/posts\/45404"}],"collection":[{"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=45404"}],"version-history":[{"count":0,"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=\/wp\/v2\/posts\/45404\/revisions"}],"wp:attachment":[{"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=45404"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=45404"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mostafa.openonline.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=45404"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}